Why do I blog? Initially, I started blogging as a record of my memories and thoughts in my caregiving journey for my mom. Dementia is still a taboo topic. A family member with dementia is not something people talk about. I felt quite alone, with no one to share it with. And although my thoughts were consumed about the tragedy of the diagnosis and the difficulties ahead, I could not keep burdening my friends about my concerns. Also, no one else cared to talk about their family member’s problems either. Dementia was a family secret, not to be revealed to outsiders. It is not uncommon, just not spoken about.
Hence, I turned to blogging.
And along the way I discovered other caregivers who were dealing with dementia. And what a resource this has turned out to be.
- how to use a sense of humour to deal with the day to day. We really mustn’t sweat the small stuff. A confident manner, and cheery attitude, can get one through all sorts of situations
- practical tips on how others may help lighten our burden
- not to feel guilty all the time
- different people have completely different manifestations of dementia and everyone’s progression is it’s own unique pattern
- what intermittent lucidity looks like, and that it can happen unexpectedly weeks or months after what one thought were the last intelligible words
- how a little support from a fellow blogger can go a long way in lifting my mood
In short, blogging has turned out to be a tremendous help, and the blogging community has been like a support group to me. And this in turn makes me feel responsible for what I write and share. When I feel down or stuck in a rut, I tend not to want to communicate it. I take a break, and even stop reading blogs for awhile. My last break lasted more than a year! I wasn’t depressed though. Life goes on, and I just stewed and collected my thoughts until I felt ready to return again. I’m glad to be back and amongst my support group again, and finding new and enriching blogs to scour support from 🙂